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TMF – its purpose and potential

Researchers voice their views

A number of researchers active in TMF – most of them for a number of years – were interviewed in 2014 at TMF’s annual conference, in Jena, Germany.

  1. Interviews

Position Papers and Statements

The TMF issues position papers, statements and expert opinions to comment on national and European policy making processes on a regular basis. These papers are coordinated and agreed upon by a broad range of stakeholders within health research and the wider health care community, depending on the issue under discussion.

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Advances in medical informatics in Germany: TMF publishes new annual IT report

Spotlight on IT architecture – A planning tool for university hospitals and healthcare institutions active in research

21 April 2016. Effective management of research data is key to ensuring findings in the medical field are reproducible and reliable. Consequently, there should be long-term visibility into each data source, including origin, time stamp, and authorship. To this end, suitable IT tools must be developed – particularly for research projects that are interdisciplinary, and involve multiple institutions. This is the recommendation made by the authors of TMF’s latest annual IT report: IT Infrastructures in Patient-Oriented Research (available in German only, with the title: IT-Infrastrukturen in der patientenorientierten Forschung). “We need to keep pace with international developments while creating these tools,” emphasises Prof. Frank Ückert, a member of the TMF Board of Directors, and Head of the Division of Medical Informatics for Translational Oncology (MITRO) at the German Cancer Research Centre (DKFZ). As a member of TMF’s IT Reviewing Board, he collaborated on this year’s report.

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High-quality biobanking is key to high-quality research

2016 international ISBER Annual Meeting & Exhibits, in partnership with TMF, on 5 – 8 April in Berlin

05 April 2016. Biobanks are valuable assets for leading-edge medical and environmental research. These high-quality collections of biological samples enable scientists to achieve reliable outcomes – and are the basis for successful and sustainable research. Against this background, representatives from international biobank communities are assembling at ISBER’s Annual Meeting & Exhibits conference from 5 to 8 April 2016 in Berlin – with the aim of transferring knowledge and exploring the latest biobanking ideas and developments. By international comparison, German initiatives have made significant progress in recent years. During the session on 5 April, National Biobanking Day in Germany, leading experts from the nation will present the insights gained in medical biobanking.

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ELIXIR teams up with TMF to develop Ethics Policy

TMF data protection experts will develop Ethics policy for the protection, access and management of sensitive data in biomedical research

18 January 2016. ELIXIR’s Ethics policy will provide a framework of ethical and regulatory standards for the provision of sensitive personal data originating from life-science research. Based on relevant regulations and best practices, it will cover ethics committee approvals, data provision and data access, informed consent, confidentiality and data security amongst others.

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TMF’s initial evaluation of the EU General Data Protection Regulation draft as of 15 December 2015

Statement on the outcome of the trilogue

23 December 2015. On 15 December 2015, the final text of the EU General Data Protection Regulation (GDPR) was agreed following three-way ‘trilogue’ negotiations between the European Commission, Council and Parliament. The next step is a vote in Parliament; however, further significant changes are not expected. TMF has examined the text and made an initial evaluation on the likely impact of the provisions on (bio)medical research.

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“Medical training does not devote enough attention to data protection or ethical issues”

Interview with Petra Duhm-Harbeck and Gisela Antony on the advisory service offered by TMF’s data protection working group

December 2015. The Lübeck Interdisciplinary Centre for Biobanking has developed a data protection concept based on TMF’s generic concepts – and has secured approval from the TMF data protection working group. In this interview, Petra Duhm-Harbeck (Lübeck) and Gisela Antony (Marburg) outline what this process involved, and explain how the working group’s advisory service can support research projects.

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The TMF data protection advisory service: tailored, real-world advice for medical research projects

Support is based on TMF’s generic data protection concepts – while a workshop enables working group rapporteurs to provide consistently excellent advice

17 December 2015. The TMF data protection working group offers practical, tailored advice to medical researchers designing data protection concepts for specific projects. After receiving this guidance, project teams can apply for approval from the group – supporting the preliminary evaluation of such concepts as required by law. “The advisory service is based on the TMF guide to data protection for medical research projects, and it has proven its worth in practice,” commented Professor Klaus Pommerening, long-standing head of the working group. He made his comments at a workshop created to strengthen dialogue amongst the group’s rapporteurs; it was held on 17 December, 2015, in Berlin.

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Today, predictive molecular testing is available for 35 per cent of all tumour types

In future, high-quality medical research will only be achieved in conjunction with biobanks

14 December 2015. “Today, we have predictive biomarkers that enable targeted therapies for 35 per cent of all tumour types. Biobanks are the basis for this achievement,” stated Professor Manfred Dietel (Charité University Hospital, Berlin) in his keynote address at the fourth National Biobank Symposium. The event took place on 9 and 10 December 2015 in the German capital. “The positive evolution of this event demonstrates the importance biobanks have gained in recent years. In future, biobanks will be key to high-quality research,” emphasised Professor Michael Krawczak (University Medical Centre, Schleswig-Holstein, Kiel Campus), who, as Chairman of the TMF Board of Directors, opened the Symposium.

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For further news articles see menu item News.


 
News

High-quality biobanking is key to high-quality research

2016 international ISBER Annual Meeting & Exhibits, in partnership with TMF, on 5 – 8 April in Berlin


 
Interviews

“Medical training does not devote enough attention to data protection or ethical issues”

Interview with Petra Duhm-Harbeck and Gisela Antony on the advisory service offered by TMF’s data protection working group


 
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