TMF Health Registry Summit 2026
The TMF Health Registry Summit 2026 will take place on June 17 and 18 at the Kaiserin-Friedrich-Stiftung in Berlin. Each year, experts gather at this event to discuss the importance of registries in health services research.
Operators of registries and researchers who work with registry data will discuss the various needs and perspectives with policymakers at the congress. The event brings together the professional community from research, politics, and industry to discuss the challenges of patient-related registries, to network, and to provide important impetus for quality development in the registry landscape, better use of registry data, also for regulatory purposes, and modern registry research.
By the way, the 17th TMF Annual Congress will take place on June 16, directly before the TMF Health Registry Summit. The venue will also be the Kaiserin-Friedrich-Stiftung.
Topic
The topic of the TMF Health Registry Summit 2026, which will take place on June 17 and 18 in Berlin, will be announced in the near future.
Conference
The TMF Health Registry Summit 2026 has established itself as an important meeting place for registry operators and researchers, politicians, and industry representatives. They provide impetus for future registry research and define future challenges for patient-related registries, also with a view to Europe.
Program (as of April 14, 2026)
Day 1
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09:30–10:00 a.m.
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Opening Remarks
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10:00–11:15 a.m.
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Panel: "What Does the Medical Registry Act Mean for Whom? A Closer Look."
With the Medical Registry Act, the framework conditions for medical registries are undergoing fundamental changes, raising the question of what impacts this will have on the various stakeholders. In this panel, we aim to discuss the following questions in detail: What consequences does the Medical Registry Act have for the establishment, operation, and use of medical registries? What roles will different institutions take on, and what requirements will this create for registries in practice?
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11:15–11:45 a.m.
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Coffee Break
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11:45 a.m.–12:45 p.m.
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Session: "Do We Need a Long COVID Registry? How Registries Can Support the National Decade Against Post-Infectious Diseases"
Post-infectious diseases have significantly increased awareness of gaps in care, knowledge deficits, and the need for robust data, bringing registries into focus as a potential tool for research and healthcare provision. What role can registries play in supporting the National Decade Against Post-Infectious Diseases? What opportunities and requirements arise, for example, in the context of Long COVID and related conditions?
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12:45–1:45 p.m.
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Lunch Break
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1:45–3:15 p.m.
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Session: "Quality Requires Funding – The Unresolved Issue of Registry Financing"
If registries are to be effective in the long term, they require not only professional standards and high data quality, but also sustainable models for funding, operation, and further development. How can registry quality be ensured on a sustainable basis, and which financing models are required for this? What resources are needed for the long-term operation of high-quality registries, and how can quality, qualification, and financing be meaningfully aligned?
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3:15–3:45 p.m.
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Coffee Break
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3:45–5:15 p.m.
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Session: "What Do Registries Contribute to the Healthcare System? What Value Do They Have for Care and Research?"
Registries can shed light on the realities of healthcare delivery, support evidence-based decision-making, and provide important impetus for research and quality assurance in healthcare. What specific benefits do registries provide for the healthcare system? How do they help to reveal the realities of care, facilitate research, and support evidence-based decision-makings?
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5:15–6:00 p.m.
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Session: "Reports from the Working Groups: What Is the Community Discussing? How Do the Working Groups Collaborate?"
The continued development of the registry landscape thrives on exchange within the community and on collaboration among working groups across various institutions, where current issues are addressed, experiences are pooled, and shared positions are further developed. What currently concerns the registry community, and which topics are being addressed by the relevant working groups? The TMF Health Registry Summit provides space to bring developments together, learn from one another, and further develop shared perspectives.
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6:00–10:00 p.m.
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Get-together
Day 2
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9:00–10:30 a.m.
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Session: "Harmonization of Data Collection: Is Harmonization Worthwhile – and for Whom?"
The harmonization of data collection and data structures is considered a key factor for improving comparability, enhancing usability, and strengthening the networking of registries in research and healthcare. Where does harmonization pay off, and for whom? The discussion will address the opportunities and challenges of harmonized data foundations for healthcare, research, interoperability, and practical access to registry data.
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10:30–11:00 a.m.
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Coffee Break
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11:00 a.m.–12:30 p.m.
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Session: "European Registries: Learning from the Best – European Registries Share Their Knowledge"
A look across Europe reveals the experiences other registry systems have already gained in the areas of networking, harmonisation and data use, and the insights that can be drawn from this for the German registry landscape. What experiences has been gained from European registries, and what lessons can be learnt from this for the German registry landscape? A particular focus is on networking, data harmonisation and the role of registries in the European Health Data Space (EHDS).
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12:30 p.m.
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End of the TMF Health Registry Summit 2026
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12:30–1:30 p.m.
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Lunch Break
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1:30–4:30 p.m.
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Post-Conference Workshop: "Registries in the EHDS: What Needs to Be Done from the Registry Side, and Where Is Support Available?"
The European Health Data Space introduces new requirements and opportunities that registries must prepare for at an organizational, technical, and strategic level. In the post-conference workshop of the TMF Health Registry Summit, the discussion will focus on what registries need to do in concrete terms to align with European requirements, and what support services are available for this process.
Looking back at the TMF Health Registry Summit 2025
[Video in German]
Hintergrund
Medizinisch-wissenschaftliche Register sind Methode, Infrastruktur und Erkenntnisquelle zugleich. Sie leisten einen wichtigen Beitrag zur Versorgungsforschung, Qualitätssicherung, Patientensicherheit und zur Gewinnung von Evidenz aus der Versorgungspraxis. In den vergangenen Jahren ist ihre Bedeutung weiter gewachsen, zugleich steigen die Erwartungen an ihre Qualität, Anschlussfähigkeit und konkrete Nutzbarkeit für unterschiedliche Anwendungsfelder.
Mit dem Medizinregistergesetz, den Debatten um nachhaltige Finanzierungsmodelle, der Harmonisierung von Datenerhebung und Standards sowie den Entwicklungen im europäischen Gesundheitsdatenraum (EHDS) steht die Registerlandschaft an einem entscheidenden Punkt. Register müssen heute nicht nur relevante Daten erfassen, sondern auch verlässlich, interoperabel und qualitätsgesichert aufgestellt sein, damit sie die Wirkung für Versorgung, Forschung und Regulierung entfalten können, die so dringend benötigt wird.
Die Registertage 2026 greifen diese Entwicklungen auf und fragen danach, welche Rahmenbedingungen Register brauchen, um ihren Beitrag für ein lernendes Gesundheitssystem zu stärken. Diskutiert werden unter anderem die Anforderungen des Medizinregistergesetzes, der Nutzen von Registern für die Nationale Dekade gegen Postinfektiöse Erkrankungen, Fragen der Registerfinanzierung, der Wert von Registern für Versorgung und Forschung, die Harmonisierung der Datenerhebung sowie Anforderungen und erste Erfahrungen in Vorbereitung auf den EHDS.
Zielgruppe
Der Kongress richtet sich an die Fachcommunity der Registerbetreibenden und Registerforschenden sowie an Akteurinnen und Akteure aus Politik, Selbstverwaltung, Wissenschaft, Industrie und Patientenvertretungen. Gemeinsam sollen aktuelle Entwicklungen und Herausforderungen für medizinische Register diskutiert und Ansätze für eine wirksame Weiterentwicklung der Registerlandschaft ausgetauscht werden.
Die Registertage setzen Impulse für die Weiterentwicklung patientenbezogener Register und für ihre stärkere Verankerung im Gesundheitsdatenökosystem. Sie bieten Raum für fachliche Debatten, interdisziplinären Austausch, Vernetzung in der Community und die gemeinsame Diskussion darüber, wie Register ihren Mehrwert für Versorgung, Forschung und Regulierung künftig noch besser entfalten können.
Register leben von der Community!
Die Registertage bieten eine lebhafte Mischung aus Fachvorträgen, Diskussionen auf dem Podium, Einblicken in aktuelle Entwicklungen, Raum für den interkollegialen Austausch und Gelegenheiten zur Wiederbegegnung und Vernetzung.
