Health Data for Medical Research: How Can Patients Participate?
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Digital health data is the foundation for innovations in medicine. The systematic use of this data will contribute to the development of innovative therapies and better and more targeted treatment of diseases. However, an important prerequisite is that patient data from medical care are uniformly structured and accessible for medical research. To this end, the Medical Informatics Initiative was founded in Germany to provide researchers with the broadest possible access to digital health data. But what do citizens in Germany think about their health data being used for research? Are they willing to provide it as a "data donation"?
As part of the workshop "Health Data for Medical Research: How Can Patients Participate?" ethicists, lawyers, patient associations, and scientists will discuss ethical and legal questions of patient participation on August 27, 2019, in Berlin.
The Federal Government Commissioner for Patient Affairs, Prof. Dr. Claudia Schmidtke, MdB, will open the workshop.
Sebastian C. Semler, Managing Director of the TMF, will then present current figures from a representative survey on Germans' willingness to donate data for medical research.
Event Information at a Glance
Workshop "Health Data for Medical Research: How Can Patients Participate?"
Time: Tuesday, August 27, 2019, 10:00 am - 5:00 pm
Location: Representation of the State of Schleswig-Holstein in Berlin, In den Ministergärten 8, 10117 Berlin
You can find the complete program here.
Press Contact
Wiebke Lesch
Phone: 030 − 22 00 24 730
E-mail: presse@tmf-ev.de
Due to limited space, please register your attendance by Monday, August 26, 2019, at presse@tmf-ev.de.
Further Information
